Virtual Didactic - Ehlers Danlos Syndrome presented by Neyha Cherin, DO-Ehlers Danlos Syndrome Led by Neyha Cherin

Video Transcription

Video Summary

In this video, Dr. Neha Sharon discusses Ehlers-Danlos Syndrome (EDS), an inherited group of disorders that affect the connective tissue. Dr. Sharon explains that EDS can have a wide range of symptoms and emphasizes the importance of a multidisciplinary approach to its treatment. She suggests a structured approach, using the acronym TEAM ICE: Therapy, Equipment, Adjunct treatments, Medication, Interventions, Consultations, and Education.<br /><br />Dr. Sharon highlights the need for physical therapy to improve strength, stability, and education on managing the disease. She emphasizes the importance of finding an experienced therapist familiar with EDS. She also discusses the need for custom equipment, such as braces and orthotics, tailored to individual patient needs.<br /><br />Dr. Sharon discusses adjunct treatments, including relaxation techniques, acupuncture, and anti-inflammatory diets. She explains that medication should be tailored to the individual patient, taking into account comorbid conditions and potential medication side effects. Dr. Sharon also discusses the importance of procedures such as trigger point injections and the need for caution with certain treatments, such as Botox, which can exacerbate instability.<br /><br />Dr. Sharon emphasizes the need for a multidisciplinary approach, including consultations with various specialists such as cardiologists, endocrinologists, and psychologists. She also highlights the importance of patient education, providing specific guidance on activities to avoid and strategies for managing symptoms.<br /><br />Overall, Dr. Sharon provides a comprehensive overview of EDS and offers practical recommendations for its management.

Keywords

Ehlers-Danlos Syndrome

Connective tissue disorders

Multidisciplinary approach

TEAM ICE

Physical therapy

Custom equipment

Adjunct treatments

Patient education